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Sunday, 20 November 2016

THE JOURNEY OF A HERO



Stroke Services BC Rehabilitation Collaborative:
The Journey of a Hero


On November 14 & 15 at 8:50 in the morning, Ron opened both sessions of Stroke Collaborative #4 with a reading from The Defiant Mind. On Monday he read about consoling one of his fellow patients after a rehab session in Nanaimo. At the time, she was feeling extremely depressed because her rehab was not progressing as well as she expected: “Before the stroke I had two heart attacks,” she said. “Compared to this they were a piece of cake.” (If you would like to read the entire passage, turn to page 44).

On Tuesday Ron read the opening pages from Chapter 7, The Wheelchair and the Urinal, which describes his arrival in the Rehab Unit and his initial struggles with the male nurse who was trying to move him from a stretcher to the bed. “I was terrified. As soon as I was standing, my entire right side collapsed like an accordion. What was happening to me?
   “Relax,” he said. “You need to trust me. I know what I’m doing.”
   Trust. This was one of those words I would soon learn was critical to every phase of my recovery. Trust and the need to be brave.”

Both Ron and I, and all the other stroke survivors who participated in the sessions, (some in all four) came away heartened to know that the over 100 enthusiastic and dedicated medical practitioners from all parts of the province, from Terrace to the Kootenays, from Prince George to Penticton, from Vancouver  Island to the Fraser Valley, are returning to their Health Regions determined to retain the gains in best practices they have made to date, and committed to continuing to improve the rehabilitation of stroke patients. They intend to keep making the best use of the resources they have. In this endeavour they are led by a number of very special people: Pam Ramsay, Cheryl Mitchell and Katie White.


Kudos to all the participants!



Saturday, 19 November 2016

Letter from THE WORLD STROKE ORGANIZATION

Who knew that "housekeeping" could turn up so many treasures? I do have the Certificate referred to in the letter, but I don't know how to reproduce it here. And I don't know if the links will work, but, anyone interested in the exhibits should have all the info needed to seek them out.

  
Dear SMITH RON,
Enclosed please find a certificate honoring your inspiring contribution to the Stroke Hobbies 2016 project. It provides a vibrant example of the statement that "There is life after stroke" and even latent creative talents can be discovered.
If you would prefer to receive a hard copy, please provide your postal address to enable us to expedite delivery.
The combined exhibition of the works is available in an e-book format and a film, which was screened throughout the World Stroke Congress in Hyderabad on 26-29 October 2016.  You can find the Hobbies Exhibition E-book here and the film here. Appropriate social media have been utilized its distribution.
Wishing you health and continued creativity.
Professor Stephen Davis                                Professor Natan Bornstein


President WSO                                   Vice President WSO 


RIDING THE WILD HORSE, MEMORY

This morning I was "house-cleaning" my Word Documents and made the following discovery-the review of Ron's book which was published in the Vancouver Sun and 5 other major Canadian papers in September 2016 . Since it was published before I began this blog I thought I should reproduce it now for those who might have missed it.


 Riding the Wild Horse, Memory

Ron Smith, The Defiant Mind: Living Inside A Stroke
(Ronsdale Press, 2016, 313 pages, $22.95)


Two years ago my father-in-law had a stroke. One day he was fine, talkative, alert and chuffed by his recent prowess at the curling rink. The next morning as he ate breakfast, he began to talk gibberish and was rushed to the hospital. Several small strokes ensued. He never recovered his ability to explain what was going on inside during those heart-breaking final days, a terrifying situation for him and for his loved-ones. Even his wife, a trained nurse, knew little about the workings of a brain shattered by stroke. If we had read Ron Smith’s The Defiant Mind: Living Inside A Stroke, I think we might all have responded differently.
            The cover painting, Jack Shadbolt’s “Bursting Orb,” perfectly evokes the central message of this important literary memoir, that a stroke is not just about physical damage, loss of speech, motor skills, even the capacity to swallow; it’s equally, or perhaps more importantly, about what is happening in and to the mind that experiences such trauma.
            “Was that really me speaking I wondered. It was my voice, it sounded a lot like an old 78 phonograph record spinning at 331/3 rpm. The words rolled and bounced around the room like tumbleweed blown on a desert wind. They had no traction, no weight, no body. No meaning. And yet they seemed heavy and thick at the same time. Like toffee or treacle.”
            Smith’s sense of humour and gift of metaphor makes this frightening journey into uncharted waters not only instructive, but also very engaging, a work that everyone should red, not only because a quarter of us will suffer a stroke by the age of 80, or be closely associated with someone who has, but also because it’s so damn well written.
This book documents loss, confusion, grief and longing, but it’s also about a bloody-minded determination to understand the cognitive damage suffered and how that understanding might be crucial to whatever healing and recovery are possible. What seems to Smith the most reliable compass for rediscovering who he is or was turns out to be memory. This is no pleasant stroll down memory lane. Instead, with his body half-paralyzed and senses hyper-alert, Smith rides the wild horse of memory, hanging on for dear life, grabbing hold of unexpected moments from his past, patching together what he can of a lost identity, a Catch-22 process because acknowledging the difference between past and present selves can also be extremely debilitating.
As a writer of poetry, fiction and non-fiction, this must have seemed to Smith very much like the creative process itself, which Joseph Conrad described as rescue work, “snatching the vanishing fragments of memory and giving them the permanence of art.” And, indeed, what he has achieved in this epic endeavour—not just dredging the past, but analysing, processing and recording it all on the computer with the index finger of his left hand—is no small miracle; indeed, it’s a tribute to the human will and imagination.
Every stroke is different, Smith insists, all the more reason why attention needs to be paid to what is happening to the mind whose “executive function” has been damaged. “Everyone could see the physical damage I’d suffered and they clearly had some idea of how best to deal with it, but no one appeared to be the least bit interested in my mental state of being. No one asked what my thoughts were or where they led. No one questioned me about the landscape and atmosphere of the stroke world. No one wanted to know its secrets.” Happily, with the help of this beautiful, moving and resourceful book, all that could begin to change.
Ron Smith has re-learned how to speak, write, walk, even swallow his favourite treat—apple sauce—but the one thing he refuses to swallow is the idea of giving up.


Gary Geddes is the author of The Resumption of Play and the forthcoming Medicine Unbundled: Dispatches from the Indigenous frontlines.

Friday, 18 November 2016

UNEXPURGATED INTERVIEW NOW ON PODCAST!



For those of you who missed the shortened North by Northwest interview live on CBC radio last Saturday, November 12, the entire, uncensored conversation between Sheryl MacKay and Ron Smith is now available. To access the podcast simply google  CBC radio/nxnw and scroll to Saturday, November 12. If you wish to skip the trumpeter swans and the fulsome figures of speech, you can fast forward to 16 minutes and start your play at that spot. 

According to Sheryl the interview has generated many e-mails to the show, reaffirming her (previously unpublished) comment to Ron: "I'm so glad you wrote this book."



Friday, 11 November 2016

NORTH by NORTHWEST

Ron's interview with Sheryl MacKay is scheduled for Saturday, November 12, just after the 7:30am news.

DOUBLE TAKES – TAKE TWO


Can you remember? Way back to October 20, 2016, and that beautiful, sunny drive to Victoria? Well, Ron was scheduled to do two interviews in the Victoria offices of the CBC that day. The first was with Gregor Craigie for On The Island and the second was with Sheryl MacKay for North by Northwest.

To do the interview with Sheryl, Ron was ushered into a second studio for a 2 PM taping. This room was much smaller, with no window, and more black soundproofing all about. There was a large instrument board with dials, a desk chair in front of the board, and a single microphone dropping down to mouth height from above. Ron sat down in the chair and donned a pair of ear phones. I was given a stool on the side of the “cockpit,” a pair of earphones and a plug in jack for my head set so that I might hear what Sheryl had to say. Ron had done a couple of interviews with Sheryl in the past so he did not feel as if he were going to be talking to a stranger.

Unfortunately, as this was a remote interview and I did not get to see Sheryl, I am unable to report if she is taller, slimmer and handsomer than she used to be. I do know that her voice sounded as silky and sultry as ever. Ron and Sheryl talked for almost forty-five minutes, with a brief interruption by a young man who had to do a live news broadcast at 2:30 PM. When he left, Ron and Sheryl continued their conversation. The edited version of their talk is supposed to air sometime this weekend on North by Northwest, on Saturday or Sunday, at some time between 6 AM and 9 AM. However, today, being Remembrance Day, it is also a holiday, so I cannot be more precise about the day or the time of the interview. No doubt it will be available as a podcast and I will post the details when I have them.


Stay tuned.